A lot of events around the world have been cancelled or postponed and for good reason, but I want to talk about why I’m sad that I’m not spending today at South Bank.
While anybody who knows me knows I love the colour purple, Purple Day is more than just a colour. Don’t get me wrong, I love that one day a year it’s acceptable to wear purple excessively but that’s not the priority.
The priority is the people. We celebrate the workers all around the world who spend their time making our lives easier, the activists who go out of their way to fight for our rights, the people with epilepsy surviving and their support systems.
Purple Day is an important event every year where I, somebody who has spent almost a decade feeling isolated and ‘othered’ by this disorder, can feel like I’m one with others. I get to celebrate in an environment created for me, free from judgement and discrimination. I celebrate somewhere I can unapologetically be myself surrounded by people who understand me, somewhere we’re all equal and worthy and don’t have to fight to be seen as such. It’s a safe space where this isolated and othered person can have fun with others just like them. A safe space I wish I had sooner to combat all the negatives I’ve faced during my journey with epilepsy.
Part of Purple Day is also about educating those who may not be as aware about epilepsy as they should be. This is something I work hard at all year every year however this year I had to listen to my body’s needs and change my approach, so it was important for me to get to still enjoy fun times and feel valid with my community.
This year is my first Purple Day as part of the official Purple Day organisation’s ambassadors, so I wanted to commemorate it with a big, fantastic, purple, day.
Hopefully, in case you didn’t know before, you realise now that Purple Day is more than just a colour, it’s a community.